SCHEDULE CHANGES Have I ever mentioned that Jess has supersonic hearing? It is ridiculous! Sometimes it seems she can hear us …
Improved Vision!
What led to vision improvement? Jessica does not 'look' blind in her appearance nor when moving around in her own environment. …
Unexpected Changes
Structural Changes After VP Shunt We had been diligently working with Jess, talking to her all the time, working with her on …
Champion of Advocacy
My Mom is my hero. She has been, is, and always will be our champion. Mom and Dad taught me everything I know about advocacy . …
Convincing the Neurosurgeon
Jess needed surgery, but the neurosurgeon wasn't on board... We were lucky. Our pediatrician was as fierce of an advocate as …