Autism and Decreased Sense of Danger
Jess was an adventurer, always climbing and exploring. Every time I turned around she was inside or on
At that young age, Jess had not yet been diagnosed as autistic. Research and literature points to the fact that children with Autism have a decreased awareness of danger. This informative article from the Huffington Post describes Dangers Of Children With Autism Wandering. The August 2013 article discusses the fascination that many autistic children have with water and reveals the many tragedies of autistic children drowning after wandering. Constant vigilance is imperative.
For Jess, water was always a favorite too, whether it was a bath tub, little pool, big pool, stream, puddle,
One day several years ago, I came home from work and she had decided to have a “water day” in her bedroom. It began with an accidental spill then grew into a multitude of purposeful spills until her floor was so saturated she could jump and make it splash a little. She was having just a grand ole time with it. When she is really happy, it is hard to get upset with her. Nevertheless, I did have one of my flip out moments. 🙂 Looking back, the whole thing is kind of funny. But also kind of not.
Just after the two-year mark, Jess started to Signal Centers whose services focus on disabilities, early intervention and self-sufficiency. She attended two days per week. As with an earlier assessment, Jessica’s language skills were almost on target, although she did a good bit of echolalia throughout the day. Gross motor skills were around a 24 month level, but fine motor skills were estimated at a 56 week level. It was noted on this assessment that Jess engaged in minimal interactions with other children.
No big shocker here, but my busy body explorer “showed some resistance to the structure of the classroom,” specifically, sitting at the table. While at the table she would cry and repeatedly ask for “bear” and say “it’s okay” to try to comfort herself. Actually, she still self comforts by telling herself, “it’s ok,” when she’s upset
Some of her goals included adults modeling appropriate language when echo language was heard, encouraging Jess to participate with decrease crying, encouraging her to sit at the table for up to 10 or 15 minutes, and model correct language such as,” I don’t want to do this,” rather than repetitively saying, “It’s ok.”
Of course, Jess needed to learn to tolerate some structure. But, I think these pictures tell the story of how she felt about sitting in the structured setting at the table.
Now, I could be wrong, but I kind of think someone must have let her latest day program borrow this same puzzle this past fall for their structured table time. And I’m pretty sure Jess still felt the same way about being told to sit at a table and do a puzzle. A major difference is, when you’re 27, you can talk back with obvious logic. “No, I don’t want to do the puzzle again because it’s boring,” which, oddly enough, offends the teacher, leading to an altercation on the second day of school.
Sigh…another day, another story…
Next: Lobbying for Education
This is a comment from facebook that I wanted to share here…
“I remember your mother telling me, when Jess was young, that Jess was so blessed to have a very young mother who was not afraid to let her explore, even at the risk of an accident. That ability on your part has payed a huge dividend through the years, and has enabled Jess to reach out toward her potential in ways that wouldn’t have happened otherwise. I must say that at times we actually held our breath (and our tongues) when seeing her do things that scared us to death. But even then we knew you were letting her reach greater heights. You have done a wonderful job with her, and she is still blessed, as are those who know her.”
As difficult as it is, letting our children explore is so important. Especially when a vision impairment is part of the diagnosis. Getting out into the environment and actually doing things hands on is the only way to experience many things. The same is true for babies and toddlers with a vision impairment. Of course, to keep them safe, it is imperative to be right there to soften the fall if and when it happens.
Nat